1. Responsible data protection supervisor
The person responsible for the collection, processing and use of your personal data in accordance with Art. 4 No. 7 DSGVO is
Dr. Werner Lechner
Phone: +49 171 160 8562
If you wish to object to the collection, processing or use of your data by us in accordance with these data protection provisions, either as a whole or for individual measures, you can address your objection to the person responsible. You can save and print out this data protection declaration at any time.
2. General purposes of processing
We use anonymised, personal data for the purpose of diagnostic support in case of suspicion of selected diseases. The procedures shorten the path to a correct medical diagnosis by placing the personal and painful experiences of affected patients at the centre of the diagnosis.
For this purpose, the working group “Artificial Intelligence in Medicine” develops questionnaires according to scientific methods and selectively for selected disease groups. Patients fill in the questionnaires online and immediately afterwards they can be evaluated within a few seconds using modern mathematical methods. The results of the evaluations provide the doctor with a quantitative indication of the presence of a disease and thus shorten the path to diagnosis.
The background to the research work is that many patients with a rare disease are not diagnosed for months or years. The average time to diagnosis is seven years. This increases the individual suffering and a possible therapy or supporting and relieving measures are delayed.
In medicine, the anamnesis is considered the basis of the diagnostic process. The anamnesis is based on the generation of information by talking to the patient and/or his relatives. It is a great challenge to filter out the information belonging to the diagnosis from the various pieces of information given to a doctor during the anamnesis discussion and to use this information to arrive at a suspected diagnosis. This path has been scientifically accompanied and realised by means of novel, experience-based questionnaires, data mining systems and neural networks, which analyse by means of stochastic procedures. The results show impressively that people with different rare diseases share commonalities in the pre-diagnostic phase.
The result of the processing process is that the recognition of rare diseases can be supported by anamnestic phenomenon recording. The diagnostic system of KImedi GmbH supports the general practitioner or paediatrician in private practice, the pilot in a rare disease centre or even the expert in the case of patients with an unusual course of the disease by means of a simple web-based online questionnaire to raise suspicion of a rare disease and thus to be able to initiate more targeted further diagnostics.
Scientific publications and numerous letters of thanks from patients confirm the success of this questionnaire, which is browser-based and available as an iOS app for iPads.
Translated with www.DeepL.com/Translator (free version)
3. What information we use and why
The hosting services that we use serve to provide the technical operations that we use for the purpose of operating the website. For this purpose we process the following communication data of users of the website in server logs:
– Date and time of website use
– Successful retrieval message (HTTP response code)
– Internet service provider of the user
– IP address of the requesting provider
We use this log data without allocation to your person or other profiling for statistical evaluations for the purpose of operating, using, securing and optimizing our website.
3.2 Personal data
All entries made by the user in the online questionnaire on the website are stored anonymously. This involves the following data:
– Anonymous user ID, which is generated from the date and time the website was accessed.
– Age in 5-year stages
– Duration of the search for a diagnosis
– Answer levels from 1 to 5, assigned to the individual questions answered.
4. E-mail contact
If you contact us (e.g. via contact form or e-mail), we will process your data to process the enquiry and in case follow-up questions arise.
5. Storage duration
We store the entries in the questionnaires in order to further improve our adaptive and adaptive system through the questionnaires currently filled in, but only as long as this is necessary to fulfil the purposes pursued.
6. Your rights as the person affected by the data processing
Under applicable laws, you have various rights regarding your personal data. If you wish to exercise these rights, please send your request by e-mail or by post to the address mentioned in point 1. Below you will find an overview of your rights.
6.1 You have the right to receive clear information about the processing of your personal data.
6.2 You have the right to obtain confirmation from us at any time as to whether and how your personal data in question is being processed.
6.3 You have the right to request from us free of charge information about your stored personal data, together with a copy of such data.
6.4 You have the right to be informed of the recipients or categories of recipients to whom the personal data has been or will be disclosed.
6.5 You have the right to be informed of the envisaged duration for which the personal data will be stored or of the criteria for determining such duration.
6.6 You have the right to have the personal data concerning you corrected or deleted.
6.7 You have the right to object to the processing of your personal data.
6.8 You have the right to complain to a supervisory authority.
6.9 You have the right to withdraw your consent to the processing of personal data at any time.
7. Data security
We make every effort to ensure the security of your data within the framework of the applicable data protection laws and technical possibilities. To protect your data, we maintain technical and organisational security measures in accordance with Art. 32 DSGVO, which we continually adapt to the state of the art. The servers used by us are located in Germany and are carefully backed up regularly.
As a matter of principle, we only use your personal data within our company. If and to the extent that we involve third parties in the evaluation of the data records within the framework of a cooperation, they will only receive personal data to the extent that the transmission is necessary for the corresponding service.
In the event that we outsource certain parts of the data evaluation, we contractually oblige contract processors to use personal data only in accordance with the requirements of the data protection laws and to ensure the protection of the rights of the person concerned.
The data controller has integrated components of LinkedIn Corporation on this website. LinkedIn is an Internet-based social network that allows users to connect with existing business contacts and to make new business contacts. Over 400 million registered users use LinkedIn in more than 200 countries. This makes LinkedIn currently the largest platform for business contacts and one of the most visited websites in the world.
Each time a user accesses our website, which has a LinkedIn component (LinkedIn plug-in), this component causes the browser used by the data subject to download an appropriate representation of the LinkedIn component. Further information about LinkedIn plug-ins can be found at https://developer.linkedin.com/plugins. This technical process allows LinkedIn to know which specific page of our website is visited by the data subject.
If the person is logged on to LinkedIn, LinkedIn will know which specific page of our website the person is visiting each time the person visits our website, and throughout the duration of the person’s visit to our website. This information is collected by the LinkedIn component, and LinkedIn associates it with the LinkedIn account of the individual. If the data subject clicks on a LinkedIn button on our website, LinkedIn will associate this information with the data subject’s LinkedIn account and will store this personal data.
LinkedIn will receive information through the LinkedIn component that the data subject has visited our website whenever the data subject is logged on to LinkedIn at the same time as accessing our website, whether or not the data subject clicks on the LinkedIn component. If the data subject does not want this information to be sent to LinkedIn, the data subject can prevent this information from being sent by logging out of their LinkedIn account before accessing our website.
The data controller has integrated YouTube components into this website. YouTube is an internet video portal that allows video publishers to post video clips for free and other users to view, rate and comment on them, also free of charge. YouTube allows the publication of all types of videos, which is why complete film and television programmes, but also music videos, trailers or videos created by users themselves can be accessed via the internet portal.
YouTube is operated by YouTube, LLC, 901 Cherry Ave., San Bruno, CA 94066, USA. YouTube, LLC is a subsidiary of Google Inc, 1600 Amphitheatre Pkwy, Mountain View, CA 94043-1351, USA.
Each time the data subject accesses any of the individual pages of this website, operated by the data controller and on which a YouTube component (YouTube video) has been integrated, the Internet browser on the data subject’s information technology system is automatically prompted by the relevant YouTube component to download a representation of the relevant YouTube component from YouTube. Further information on YouTube can be found at https://www.youtube.com/yt/about/de/ As part of this technical process, YouTube and Google are informed which specific subpage of our website is visited by the data subject.
If the person concerned is logged on to YouTube at the same time, YouTube recognises which specific subpage of our website the person concerned is visiting by calling up a subpage containing a YouTube video. This information is collected by YouTube and Google and assigned to the respective YouTube account of the person concerned.
YouTube and Google receive information via the YouTube component that the data subject has visited our website whenever the data subject is logged on to YouTube at the same time as he or she visits our website, regardless of whether or not the data subject clicks on a YouTube video. If the data subject does not wish this information to be transmitted to YouTube and Google, he or she can prevent the transmission by logging out of his or her YouTube account before accessing our website.
The data protection provisions published by YouTube, which can be accessed at https://www.google.de/intl/de/policies/privacy/, provide information on the collection, processing and use of personal data by YouTube and Google.
10. Supervisor for data protection
Should you have any further questions or concerns regarding data protection, please contact our data protection officer.